The Waiting is Hard

I thought I'd keep notes on how things are going while we wait to see the rheumatologist on February 23rd.
Oliver saw the eye doctor who gave his eyes a clean bill of health, praise God!!!

A couple days after we found out about this possible diagnosis (Wednesday), Oliver started limping on his right leg too. At first we thought it was just because he was over compensating but the next day both knees were very swollen. On Friday Oliver woke up in a ton of pain and wouldn't walk at all even though we were giving his Naproxen as directed. I called his pediatrician who said to give Tylenol too when he seems to need it and the Naproxen isn't due yet. She asked if he had any redness or fevers and I told her nope. We did the Tylenol along with his Naproxen and for the next couple days it did seem to help. On the following Wednesday he had a GREAT day with hardly any fussiness and walked on his own (though he still limps). I decided to try not giving the Naproxen the next day to see how he would do (don't do this...bad idea) and he did well until after nap time when he was in a lot of pain so I gave him his dose and haven't skipped a dose since.

On Saturday it was beautiful here in Colorado, 61 degrees and sunny so we went outside as a family and played in the sunshine with neighbors, bikes, scooters and chalk. Oliver did great, was happy (still limped) but had fun! We went in around 11:30 to get ready for lunch and the boys sat on the couch and relaxed and watched TV. I went and sat down with them and held Oliver and he felt exceptionally warm. He also looked terrible, tired, and out of it. I took his temperature and it was 102.6! We were shocked as he was just outside playing and feeling good. After lunch (he hardly ate) I gave him Tylenol and it brought down the fever to 100.6. After bath time I put them down for bed and around 10pm I went in to fell him and make sure he wasn't hot, which he felt fine. He woke up today without a fever and doing well. (With swelling in both legs) We decided, since no fevers, or symptoms of illness were present we would go to church. After, we picked Oliver up from the nursery and they said he seemed tired. We got home and he was burning up again! This time his temp was at 103.6 and I was really concerned. He wouldn't nap and just played lethargically and sickly looking on the bed next to me. I gave him tylenol and after one hour his fever was at 100.8. After 3 hours his fever was gone and he was up playing with Liam again. Super strange and concerning. I have emailed the pediatrician because she told me to let her know if anything else develops. Things are developing so quickly that we are hoping to get in sooner to see the rheumatologist. Ill update tomorrow with what the pediatrician has to say.